Imagine if every step you took was agony or if even putting a shirt on was painful. That is what daily life is like for children and adults who are living with the rare genetic condition called Epidermolysis Bullosa or EB. Patients with EB lack the “glue” that normally binds skin together. The slightest touch can result in blisters and wounds comparable to 3rd degree burns- every day is filled with constant pain.
In an effort to help support families living with EB,
Grouse Mountain and DEBRA Canada, are coming together on February 19th, 2016 to increase awareness of this challenging disease and raise valuable funds for those affected by EB. Join this year's two ‘Belles of the Ball’ – our honorary guests, DEBRA Canada Young Ambassadors Deanna Molinaro from Stoney Creek Ontario, and Izzy Porter from Kamloops BC - for a fun-filled evening of Broomball at scenic Grouse Mountain in North Vancouver, BC.
This year marks the 4th annual event where teams will compete against one another in this action-packed game, where players use a broom and ball, NO SKATES. Gather your friends, family and colleagues from the office, and each team will compete in a 20-minute game. DEBRA will provide teams with a quick tutorial on how the game is played, all the necessary equipment, and an eye-opening experience in to the life of those living with EB.
Proceeds will go toward DEBRA Canada’s programs and services assisting families with Epidermolysis Bullosa.
Learn more about DEBRA Canada here
or by watching the ESPN E:60 special “ Butterfly Child”
about 14 year old Jonathan Pitre and his daily struggle with EB.